The Immunology Clinic Data base (ICDB) is a relational database on a SQL server, hosted and maintained by the Lifespan Information Systems department. It contains demographic information on The Miriam Hospital Immunology Clinic patients as well as the histories of Clinic Medical and Social Services visits (from 2003), history of CD4 tests and results (from 1995), history of Viral Load (PVL) tests and results (from 1995), history of all other Annual test (from 2003), history of medical problems or diagnosis, and history of medications used (from 2003). Hepatitis (A/B/C) serology, vaccination, and treatment information is also maintained in ICDB.

An Annual ICDB Data Report is created each April and includes a summary of the most important and frequently requested data items. In addition, it provides general information that can be used in grant applications and presentations where summaries of the clinic population are necessary. (Current report-2008).

Requests for information not included in the annual report can be provided by completion of one of the following data request forms (DRF) and forwarding the request via email to the CFAR administrative office (rdicesare@lifespan.org) for processing. Each form must be fully completed and approved via email by a CFAR faculty member before the request will be forwarded for review and approval.

1. DRF for exploring study feasibility or preparing a grant application. This form must to be completed if you are interested in receiving summaries of data for purposes of determining the feasibility of a study or preparing a grant application. Only de-identified data will be provided and IRB approval is not required.
2. DRF for clinical purposes. This form must be completed if the information you are requesting is to be used for non-research related purposes. Examples of Clinical requests include identifying “lost to care” patients; patient listing by physician; list of patients on specific medications; patients listing for standard of care testing (i.e., Hep A/B/C, PPD, pap smears, mammograms.); etc.
3. DRF for funded research purposes. This form must be completed if the information you are requesting will be used for research related purposes (i.e., study participant recruitment, chart review, publications). All requests for research data must have IRB approval (http://www.lifespan.org/research/irb/) and a funding source named.