The
Cystic Fibrosis Center 
What to Expect
What patients can expect at every visit
- Check in at registration and update your records with
the correct address, phone number and primary care physician.
- Height, weight, pulse oximetry and if the child if five-years
of age or older, pulmonary function testing.
- Review and report all medications, dosage and frequency
of use. While it might be repetitious to write out all of your
medications at each visit, this ensures that we know exactly what
you are taking. This is also your opportunity to review what prescription
refills you might need and raise concerns you might have and want
to discuss. If there have been any changes in respiratory, digestive
or other symptoms, please make sure we know this. Download
this form to bring with you the day of your visit.
- Visit with the doctor and any other team member that
you or the team thinks appropriate.
What patients can expect every three months
In addition to what is expected at every visit, after three months,
patients will have:
- A
sputum culture—This test is done on a case by case basis.
Some patients will have this done more frequently and some less
frequently.
What patients can expect once a year
In addition to what is expected on every visit, on an annual
visit, patients will have:
- A Chest x-ray
- Blood tests that include vitamin and protein levels,
blood count, blood chemistry, liver and kidney function tests.
- A complete nutritional evaluation that includes review
of pancreatic enzymes, dietary needs and intake, and classification
of nutritional status.
- A social work evaluation that includes a review the strength
of family and social support, financial and insurance needs, and
problems with school or job.
- Respiratory therapy evaluation that includes review
of airway clearance technique, inhaler technique and respiratory
equipment.
Please arrive on time
We would greatly appreciate that you arrive on time for your appointment.
If you need to cancel or reschedule an appointment, please make
every effort to call 24 hours in advance; this allows us the opportunity
to offer your slot to another patient in need of care.
For more information please call 401-793-8560.
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