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  • Helpful Links

  • Below are links to other sites about a variety of fetal conditions.They range from support groups to professional societies, fetal treatment centers, sites about on-going clinical trials and general information sites.

    Support Groups

    EA|TEF: Support group for patients with esophageal atresia and tracheo-esophageal fistula.

    Twin Hope: A website about twin-to-twin transfusion syndrome and allied fetal conditions.

    Twinstuff: A large informational site for multiples and their families. They manage a non-profit organization that assists families in need with twins and triplets.

    TTTS Race for Hope: The TTTS Race for Hope was organized to save babies lives and to give hope to families by spreading awareness of Twin to Twin Transfusion Syndrome (TTTS) and by funding medical research.

    Twin to Twin Transfusion Syndrome Foundation: Another website about twin-to-twin transfusion syndrome and allied fetal conditions.

    TwinTTTS: is a non-profit site from down-under "dedicated to creating awareness of Twin to Twin Transfusion Syndrome.

    Mo-Mo: The Monoamniotic-monochorionic Support Site, created by parents and volunteers, and started as an informal e-mail/bulletin board.

    twin2twin: A British support group for parents of twins with TTTS, with a lot of information on research, treatment options and treatment centers in Europe.

    Cherubs: The association of congenital diaphragmatic hernia research, advocacy and support.

    Breath of Hope, Inc. A nonprofit organization that offers support to parents of children with congenital diaphragmatic hernia, promotes awareness of the condition and encourages research.

    Professional Societies

    Society for Maternal-Fetal Medicine

    Surgical Section of the American Academy of Pediatrics

    American Academy of Pediatrics

    American Pediatric Surgical Association

    Fetal Treatment Centers

    For a list of centers that offer invasive fetal treatment for severe Twin-to-Twin Transfusion Syndrome, click here

    Ongoing Clinical Trials

    Prenatal Treatment for Diaphragmatic Hernia
    We are now conducting a pilot program to treat the most severe forms of diaphragmatic hernia before birth. Thanks to an Investigational Device Exemption from the Food and Drug Administration (FDA), we now offer fetal tracheal occlusion using a minimally invasive technique. For more information, read below or contact our coordinator at coordinator@fetal-treatment.org.

    MOMS Trial
    The web site to the National Institutes of Health (NIH) study on prenatal treatment of myelomeningocele (open neural tube defects, or "spina bifida").

    General Information

    Twins Magazine: "A magazine for parents of multiples" with an exhaustive web site on everything for and aboout twins, including links to resources on TTTS. 

    Perinatology.com is an informational web site maintained by Focus Information Technology, as an educational resource for perinatologists, referring physicians, and genetic counselors. Information on the site has been written by perinatologists and genetic counselors of The San Gabriel Valley Perinatal Medical Group.