Alzheimer's Disease & Memory Disorders Center
The Largest Memory Assessment Program in Rhode Island
The Rhode Island Alzheimer’s Disease Prevention Registry
Join the Registry
Want to learn more? Join the Rhode Island Alzheimer’s Disease Prevention Registry.
The Rhode Island Alzheimer’s Disease Prevention Registry was established in 2012 with the support of an infrastructure grant under the Alzheimer’s Disease Cooperative Study with the goal of enlisting people in the community with normal cognitive and daily living function who are interested in participating in Alzheimer prevention research.
The registry is included in the Rhode Island State Plan for Alzheimer’s Disease that was instituted in response to the National Plan to Address Alzheimer’s Disease. Participants are recruited by various community outreach efforts such as public presentations and advertisements as well as directly from the family and friends of patients attending the Center.
With more than 20,000 people in Rhode Island, 5 million people in the U.S. and 35 million people suffering worldwide, Alzheimer's disease (AD) is posing a huge problem for our aging population with an enormous physical, emotional and financial toll. We need to find effective ways to delay early developing symptoms or someday even prevent it from developing, as quickly as possible. Prevent AD is intended to gather together interested members of the Rhode Island community to help do just that.
One of the first roadblocks to rapidly developing effective prevention strategies for AD is to identify enough volunteers to participate in the important multicenter national studies that are ongoing and planned for the near future. By signing up for Prevent AD, volunteers are informed of AD prevention studies for which they may be qualified, as well as timely educational information on the latest in brain health. The Prevent AD program is dedicated to giving those people at highest risk of Alzheimer’s symptoms access to the most promising treatments for prevention trials.
To qualify volunteers must speak English, be at least 50 years of age, and be willing to take some brief tests of memory to determine eligibility. People with currently normal memory as well as those with mild memory loss are encouraged to participate. Those who already have a diagnosis of Alzheimer’s or dementia are excluded.
Volunteers are encouraged to sign up to be on the Prevent AD mailing list and/or e-mail list so that they can receive updates and information about important research programs in Rhode Island that are currently recruiting volunteers. There are different types of studies available now and more planned for the future. Some studies involve minimal ongoing assessments in single visits or over time, while others involve treatment with medications or behavioral programs. By volunteering for participation in clinical research, you are contributing to an effort that could potentially improve the lives of millions of people.
Interested people may contact us at 401-444-2484 or email firstname.lastname@example.org for more information or if they are interested in participating in Alzheimer's prevention trials, now or in the future. Sign up now, together we can make a difference in the fight against Alzheimer’s disease!
Support Alzheimer's Disease Research
Donations to the center are gladly accepted. To support our research, call our development office at 401-444-6500.