Fetal Treatment Program: Resources
Below are links to other sites about a variety of fetal conditions. They range from support groups to professional societies, fetal treatment centers, sites about ongoing clinical trials and general information sites.
Support Groups
- EA|TEF: Support group for patients with esophageal atresia and tracheoesophageal fistula.
- Twin Hope: A website about twin-to-twin transfusion syndrome and allied fetal conditions.
- Twinstuff: A large informational site for multiples and their families. They manage a non-profit organization that assists families in need with twins and triplets.
- TTTS Race for Hope: The TTTS Race for Hope was organized to save babies lives and to give hope to families by spreading awareness of Twin-to-Twin Transfusion Syndrome (TTTS) and by funding medical research.
- Twin-to-Twin Transfusion Syndrome Foundation: Another website about twin-to-twin transfusion syndrome and allied fetal conditions.
- twin2twin: A British support group for parents of twins with TTTS, with a lot of information on research, treatment options and treatment centers in Europe.
- Cherubs: The association of congenital diaphragmatic hernia research, advocacy and support.
- Breath of Hope, Inc. A nonprofit organization that offers support to parents of children with congenital diaphragmatic hernia, promotes awareness of the condition and encourages research.
Professional Societies
- Society for Maternal-Fetal Medicine
- Surgical Section of the American Academy of Pediatrics
- American Academy of Pediatrics
- American Pediatric Surgical Association
Ronald McDonald House
The Providence Ronald McDonald House provides a "home away from home" for families of children being treated at Hasbro Children's Hospital, Rhode Island Hospital, Bradley Hospital and Women & Infants' Hospital. It is located on the joint campus of Rhode Island Hospital and Women & Infants' Hospital. It offers four family suites accommodating up to six family members, as well as nine other rooms for two to four family members. All rooms have a private bath and many are handicapped accessible. Learn more about Ronald McDonald House »
Pediatric Intensive Care Unit
Our program enjoys use of Hasbro Children's Hospital's pediatric intensive care unit, which has state-of-the-art design, organization and equipment, and is staffed by specially trained physicians, nurses, respiratory therapists and a broad-based team of professionals with expertise in the care of critically ill children. The PICU includes two suites of eight rooms each, located around a central nursing station. Each child has his or her own fully monitored and specialized room.
