The numbers grow each year, but the causes of these diseases are unknown. Treatment has improved over time but there is relatively little scientific data to guide individual therapy.
The state of Rhode Island, with its small size and diverse population, is an ideal place to do the research needed to get much-needed information about the causes of IBD, and to learn about why the course of the illness varies among individuals. The Ocean State Crohn’s & Colitis Area Registry, or OSCCAR, is the first study of its kind in the United States.
The inflammatory bowel diseases, or IBD, include Crohn’s disease and ulcerative colitis. These two types of IBD are chronic illnesses that affect approximately 1.4 million Americans.
The goal of this study is to identify each person with a new diagnosis of Crohn’s disease or ulcerative colitis in the state of Rhode Island. Study volunteers—men, women, and children—are being followed over time to identify outcomes of these illnesses and to determine what factors may improve outcomes.
The staff of OSCCAR includes physicians and research coordinators who develop material for patients and guide them through the study.
Please Note: Enrollment for OSCCAR is currently closed.