Hemostasis and Thrombosis Center
About The Hemostasis and Thrombosis Center
The Hemostasis and Thrombosis Center at Rhode Island Hospital (formerly known as the Rhode Island Hemophilia Treatment Center) is a comprehensive center for the screening, diagnosis and treatment of pediatric and adult patients with hemophilia and other types of bleeding and clotting disorders.
How to Reach Us
To contact the Rhode Island Hemostasis and Thrombosis Center, please call 401-444-8250.
We are the only hemophilia center in the state and one of only four centers in the New England region to offer a 340B program, which allows us to deliver factor directly to our patients. Our enhanced services are unique and provide our patients with additional benefits they may not receive at other hospitals and health care providers.
We are proud of our affiliations with the National Hemophilia Foundation, the Centers for Disease Control and Prevention, the Maternal and Child Health Bureau and the American Society of Hematology.
Flow Too Heavy?
If a menstrual flow seems too heavy, lasts too long, or more painful than normal, a visit to Lifespan’s Adolescent Menstrual Clinic may bring relief.
What to Expect in Hemostasis and Thrombosis Disorders Treatment
Many parents who have a family history of hemophilia or thrombosis will ask for their children to be tested. Diagnosis of a bleeding or clotting disorder is made using specialized laboratory tests performed by the Rhode Island Hospital laboratory.
Ours is the only federally funded hemophilia treatment center in Rhode Island and as such provides enhanced services to our patients.
In cases of severe hemophilia, intravenous factor replacement may be administered on a regular schedule at home. In recent years, the treatment of hemophilia A has been revolutionized by the development of an injectable therapeutic that mimics the action of Factor VIII and is easier to administer at home.
Individuals with moderate or mild hemophilia who require only intermittent factor replacements following injuries or bleeding events, or for surgery, may come to the hospital for treatment.
With our care, most patients enjoy healthy, active daily lives, fully participating in school or work, non-contact sports, and other activities.
Bleeding Disorders Clinical Trials
Researchers at Lifespan are actively studying hemophilia and other types of bleeding and clotting disorders.
See current clinical trials:
Our Team of Caregivers
Our team, which includes physicians, nurse practitioners, nurses, phlebotomists, social workers, medical assistants, psychologists, registered dietitians, rehabilitation therapists, pharmacists, child life specialists, and administrative staff, collaborates to enable the quickest possible diagnosis of your child’s condition and a timely start to therapy as well as superb follow-up care. We provide patients and families with comprehensive care plans – whom to call and when to call, 24/7 – to guide them if their child suffers an injury or a bleeding event.
Bleeding and Clotting Disorders We Treat
Bleeding and clotting disorders are rare. For example, hemophilia A, also known as factor VIII deficiency, is found in one of 5,000 boys born, and hemophilia B (factor IX deficiency) one in 30,000. Hemophilia is a hereditary disorder. Because of the way genes are passed down, females are far less likely to have hemophilia; rarely, they may be diagnosed, and typically they have a mild form of the disease.
In thrombophilia, blood clots too easily, which can lead to deep vein thrombosis or a pulmonary embolism. The condition may go undiagnosed until a clot unexpectedly forms.
Among the conditions we treat are:
- Hemophilia A
- Hemophilia B
- Von Willebrand disease
- Platelet disorders
- Rare factor deficiencies
- Heavy menstrual bleeding
- Pediatric clotting disorders, including:
- Inherited thrombophilia (including Factor V Leiden, Prothrombin Gene Mutations, Protein C, S and antithrombin deficiencies)
- Deep vein thrombosis
- Pulmonary embolus
Hemostasis and Thrombosis Center Research
The Hemostasis and Thrombosis Center conducts research to advance treatment for bleeding and clotting disorders in association with the American Thrombosis and Hemostasis Network, the US Centers for Disease Control and Prevention, and the Maternal and Child Health Bureau of the US Health Resources and Services Administration.
If you are a researcher and would like more information about research opportunities, please visit the Lifespan research administration website.
